Collaborative Blog for People Exploring Alternative Therapies for Multiple Sclerosis
January 1st, 2012Warning: Nothing that appears on Cryptogon should be considered medical advice.
Douglas Rehder, owner of Phantom Report and a Cryptogon reader and supporter, has started a collaborative blog, Multiple Sclerosis Untapped, for people who are actively exploring alternative therapies for MS. Susie Rehder, his wife, has MS.
I mentioned to them that a surprising number of Cryptogon readers’ lives had been affected by MS and that benefits might be derived from a collaborative information exchange. They agreed.
I never share any individual’s personal information, contact details, etc. with anyone else without explicit permission. Rather than trying to individually communicate with everyone who has written to me about their MS experiences to see if they want to participate, let this post serve as the invitation.
Below are messages from Douglas and Susie to Cryptogon readers who are dealing with MS:
Hi Kevin,
We found time to put together a blog called Multiple Sclerosis Untapped (http://www.msuntapped.com/).
Welcome!
Multiple Sclerosis Untapped blog is to bring together the men and women who have chosen to improve their lives though diet and other not yet discovered natural treatments. We hope you all have had a chance to watch the presentation by Dr. Terry Wahls. She drastically improved her MS symptoms with an organic diet that properly fueled her body. If you have not watched the video, you should. Minding Your Mitochondria: Dr. Terry Wahls Cured Her Worsening Multiple Sclerosis with Diet. It is an incredible story. MS Untapped will consist of multiple authors that allows members to build a blog community to communicate with one another, share ideas, provide progress and support each other in times of need.
MS Untapped Community
The goal is to have a blog community for people who have MS and provide them with options not based on conventional medicine (poison).
You can forward the others interested in building this community to msuntapped@gmail.com. We will add them as an author. We are looking forward to interacting with all of you.
-Best
Douglas
A brief message from Susie
We have lived with MS since 1994. I was diagnosed with MS at the age of 23. The MS symptoms started with optic neuritis and tingling in the fingers. Let’s jump to my present MS symptoms. I can stand up , but I can’t walk without falling down and hurting myself. I am using a motorized scooter for mobility. Here is a breakdown of my treatments since 1994.
Copaxone- 10 years
Novantrone – 2 infusions
Tysabri – 2 years
Rebif – 6 months
Two CCSVI procedures
Presently – no treatment
We ran out of conventional MS treatments until my husband discovered information that a paleolithic diet ( Dr. Cordain) helps MS patients. Last week, my husband recently showed me the Dr. Terry Wahls video. I now have some inspiration and hope to improve my life. We ordered Dr. Wahls book and will begin her diet recommendations immediately. I am looking forward to sharing my experiences, ideas and progress along the way.
Sincerely,
Susie Rehder
—
Related:
Minding Your Mitochondria: Dr. Terry Wahls
Cryptogon Reader’s Family Member Has Multiple Sclerosis
This is an excellent idea and gesture, Kevin!
I’m looking forward to communicating with people who can explore further outside the box than “Avonex or Copaxone?”.
You should add ‘facilitator’ to your many job titles – thank you very much!
Off I go to check out the Rehder’s blog…
^_^
Oh, btw – Doug might want to know that the blog ate my little pleased-to-meet-you comment, both with the Preview button and the Publish button.
Other than that – good start! 🙂
Thanks erth2karin, just made the fix so folks can leave comments. Can’t wait for all of us to get this blog rolling and discovering a better solution.
Douglas